Ok I am alive!! I am still weak but I am getting stronger by the day.
Wow this entire experience has been bad! I learned the the BIG difference between private health insurance like I used to have Kaiser and the Medicare health insurance in have now. So I will start with my cardiologist told me to go to the ER to be admitted. Sounds simply. With my previous insurance I would simply go to hospital to admitting and be admitted. I have had this insurance since 1996.

My hips and legs were in severe pain and I could barely walk. We drove up to the ER entrance. My husband went inside to get a wheel chair for me. He came out and said sorry honey he couldn't find one. I also had to pee really bad. He helps me out of the car and he turns around and I hold onto his shoulders. We walk slowly. I am crying because the pain hurts in my hips plus I am now uncontrollably urinating all over myself and the floor with each step. People can clearly see this is happening. I was crying to my husband. He said " how the hell cares what these people think"! We got to the bathroom and I changed. I came out and my husband had found a wheelchair. We wheeled out to the waiting room and to my horror a janitor was mopping up my urine trail! My husband disgusted me and it was as if I had a contagious disease. The seats around me cleared out faster then as if someone has yelled "IMMIGRATION"! In the ER! Lol
husband went

I was confused because even though my doctor had called the hospital and told the I was coming to check in and I had congestive heart failure previous heart condition of cardiomyopathy with an ejection fraction fallen back down to 20%....I had to go through the ER like everyone else here. Yes like the other 85 other people! We got there around 2:30ish . Around 6pm my coughing and breathing became worse. My fingers became numb and I lost the blood flow. I was taken back to the triage nurse. Where they bumped me up to another level. Which would get me back to the ER quicker! While we were waiting we went to have a chest X-ray, blood work and an EKG! When we were finally called to the admitting window I almost lost it when she told me this didn't mean I was being admitted. I still had to now wait to be called back to the ER! I couldn't believe how stupid this entire ordeal was. I wasn't there to visit the ER doctor. I was there to be admitted. Finally we were called back. I was dumped on a gurney and then left alone. After 45 minutes a lady nurse came in and hooked me up to the heart monitor. i told her I had to go to the bathroom. She put on some non-slip socks on my feet. Then when I got back from the restroom she hooked me up to the heart monitor. That was the one and only time we ever saw her. It was like she just just disappeared! Then about an hour later a male nurse came in and was irritated that the lady nurse never put an IV in me. So he put one in. I will continue my story tomorrow. It's too long to read in one day! Lol

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I hope everyone has a fantastic day!
Christine


 
Coughing, not sleeping and falling!
I haven't posted in few days. I have been sick. I lay awake all night coughing and coughing. I have tried just about every type of cough medicine that's out there. Sure they stop my cough for 10- 15 minutes so unless I drink an entire bottle I don't see any cough medicine helping to stop my cough. I am so tired or coughing! I have tried sinus meds, cold meds and severe cold meds. I know I am not in need of an antibiotic because my phlegm hasn't changed colors.

So we had a garage sale Saturday. I was bending down to pick up some items that my husband had placed under a table. I squatted down. I tried to get up but with all my strength I couldn't pull myself up. Thankfully my husband was right there to grab me so I didn't hit the cement. Later on that day I was inside my house. I bent down to grab some books. I squatted again. This time I was alone in my hallway. I tried with everything I had to pull myself up. I couldn't. It was as if my lower legs have no strength. I was so scared! I fell backwards. I hit my head on the floor and it also knocked the wind out of me. I laid there I couldn't catch my breathe. I was so scared. The only thing i saw was my sweet dog beside me. He looked very scared! i have never seen him look this way before. I felt like a fat roach stuck on its back, but I couldn't breathe. I could shout for help cause I couldn't breathe. It took about 10 minutes to catch my breathe. Then like a beached whale I rolled over and crawled to my bedroom. I crawled to my knees then onto my bed. I learned I can no longer squat down. Shoot my vitamin D in low I don't want to fall and break a hip or a bone. Who will do the laundry, the shopping and the cleaning in my house? Maybe the "laundry fairy" , "shopping fairy" and "cleaning fairy" that my family thinks does it now!! LOL

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I hope you have a great Wednesday.
Thanks,
Christine
 
Dry Mouth
We have all experienced dry mouth on occasion. Sometimes it may be from medicines or from a cold that may cause you to sleep with your mouth open. I am am experiencing this right now. I woke up earlier and my tongue felt as if it had completely dried out. I touched my tongue and even the texture of it felt different. I couldn't speak at all. I wondered if I should stick my tongue into a cup of water to rehydrate it! I took a drink of water. I swished it around my mouth a few time before I swallowed. My tongue still didn't feel normal yet. I drank more water and got a cough drop. I wondered if a tongue can actually completely dry out and fall off? If that's possible I was pretty close today!!! LOL

That is one of my biggest pet peeves. Talking to someone who has a dry mouth! They don't have to be in front of me either, because on the phone can drive me crazy too!!! I was talking to my son tonight and he said you need a drink of water. I said "oh does that drive you crazy too". He said "yes"! I don't know what it is about that that drives me crazy and makes me sick to my stomach at the same time! LOL

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I hope everyone had a great weekend. I hope you have a blessed week.
Thanks,
Christine
 
Bladder Woe's
Apparently a bladder is about the size of a pear. You know how a cow has 4 stomachs. I am starting to think my bladder has split and divided into four teeny tiny bladders. I know it sounds crazy and stupid but what else could explain my bladder? I go to the bathroom. It seems quite urgent and all that comes out is about a 1/4 of a cup. I get up start to walk out a BOOM! The urgency comes back. I turn around and go back. This time I go slightly go a little bit more. This is why I feel like my bladder has split into more than just one! LOL

I went online and found this hilarious!
It's on doing bladder exercises.

When you start training, empty your bladder first thing in the morning and not again until the interval you’ve set. (Ok if we could control our bladders like this would we need to do these exercises??)
If the time arrives before you feel the urge, go anyway. If the urge hits first, remind yourself that your bladder isn’t really full, and use whatever techniques you can to delay going. (Ya cause telling your bladder its not full and your not going to empty it will work!! hey maybe if that doesn't work we should try cussing our bladders out! maybe that would work!!! lol) Try the pelvic floor exercises (if i get on the floor who is gonna help me up??? ) sometimes called Kegels, or simply try to wait another five minutes before walking slowly to the bathroom.(WAIT.....if I wait I will be waiting in wet clothes and standing in a puddle)

I found this whole this so stupid and useless!!! It did mention in the article about injections. It never mentioned what kind of injections it was. Have you ever heard of an injection that helps with bladder issues? If you have let me know.

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I hope you have a wonderful Sunday!
Thanks
Christine
 
Do you let MS dictate your life?
I think most of us are guilty of this more times then we are aware of it. I know I am. We are all married to MS and sadly we can't get a divorce. We can't allow MS our ruin our lives. You can't be afraid to ask for help if you need it. You can't stay locked inside your home. You need to get outside and stop keeping yourself cooped up. Get out and go to your local MS meeting. It's only once a month. You will meet people in your area with the same struggles as you. We can never have too many friends.

We all have strengths inside us that we don't know we have. It's time to reach deep inside ourselves and grab that strength and stop letting MS live our lives for us! Dang it!!! Lets all STOP and make a change today! It will be like we got a separation (instead of a divorce) from MS!! LOL

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I hope you all have a great Saturday!
Thanks
Christine

 
I "Al Roker'ed it"!
I watched 60 minutes on Sunday. Al Roker was on there. He talked about his gastric-bypass. He spoke about one day he ate something he shouldn't have. He was at the White House getting ready to interview President Obama. He said he suddenly pooped his pants and had to throw his underwear away in the bathroom at the White House! So I figured if Al Roker can tell the world he pooped his pants at the White House then dang it we shouldn't be embarrassed if we do it too!!!! So let's all feel free to say it.....I have "Al Roker'ed in my car twice....and once in my bed!!!! Go ahead and just say it! It's freeing!!! LOL

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It's FRIDAY!!!! I hope everyone has a great day and that no one pulls an "Al Roker"!

Thanks
Christine
 
400,000!!

I have had MS for 7 years now and back then they claimed there were 250,000 people diagnosed with Multiple Sclerosis. I find it VERY had to believe that in 7 years only 150,000 thousand people have been newly diagnosed. For goodness sakes there are more than 250,000 people on Facebook that have MS!

Why does it seem like they are trying to down play the number of people effected by Multiple Sclerosis? It doesn't seem like they try to do this with any other disease. If anything they may raise the number to get more funding. So can someone please explain to me why we don't have an accurate number for those of us effected with Multiple Sclerosis? Unless you believe that our disease is slowly stopping? Ya I wish too!


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I hope everyone has a terrific Thursday!
Thanks
Christine
 
It's was sure crowed at the cardiologists office today. At times it was standing room only in the waiting room. We were all waiting sonogram for our name to be called that when they did. It was as if we were being called down on The Price is Right! Joe Smith Come on down!!!!

When I was in the exam room with his nurse. After we finished all the normal stuff she tells me she has to do an EKG. She gives me this pink paper half top. She tells me to put it on leave it open in the front. I opened it up before she left the room. I told her "oh thanks for the tiny paper smock!" So she leaves. I go to put this lovely paper half shirt on. I raise my arm up and first I fart! Yah!!!! I didn't realize raising my arm was a trigger that set off the fart button! Then the damn gown rips in half. Yes it "fat guy in a little coated it"! Lol I hope you know what that means. It was better that it ripped. I laid down and because it ripped it actually covered my stomach! My back was completely uncovered! Lol
I was concerned when she came back in to do the EKG that my fart had not had enough time to dissipate. I don't know if she smelled anything. It's hard to tell when it's your own! Lol

So my doctor comes in. We get to talking. I tell him I do cardio everyday! I have to run back and forth to the bathroom all day long! He laughed! I said "oh does that not count"? So I talk with him about my MS. I told him I know you may look at me and think I look healthy. That's a problem a lot of people with MS have. Really I am jacked up on the inside from the MS! He laughed. He was a really nice doctor. We did talk about transplants briefly and he said well your still young so you wouldn't wait long. I said ya but what about my MS. Will they give me a new heart with my MS? He said oh good question! I jokingly said "oh great I will have get one off the black market!" I said I've seen some scary movies about that!

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I hope you have a great Wednesday!
Thanks
Christine
 
Biggest Loser!
I am sure many of us have a plan to lose weight this year. I have. I would love to lose 50 pounds. I love to watch the show The Biggest Loser. It am always so motivated while I watch the show. I am sitting there on my couch usually eating something cheering on my favorite contestants! I know I am not the only one who does this either! Lol

I finally go to the cardiologist on Tuesday. I can't wait because this getting out of breathe crap for no reason. I swear sometimes I think I am gonna die! It's the same doctor my brother sees. I know the first thing he will say is I need to lose weight. I will say I am trying but with my MS and all it comes with that its hard! Fatigue, migraines, aches and pains ect! It's hard! I should have had the lap band while I had private health issuance! My sister got gastric-bypass and lost 200 pounds. She weighs 120 pounds! She doesn't even look like the same person. It's weird how weight changes the way you look completely!
Wouldn't it be the ultimate motivation if we could get a picture of what we would look like after we lost weight.

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I hope everyone has a great week!
Thanks
Christine
 
DNR....& End of Life Directory...do you have one in place? Do your loved one know what your wishes would be? I know it's something we don't like to talk about.....but YOU NEED TOO!
It's something we all occasionally may talk about and say "we need to do that" but don't end up doing it. I am guilty of this as well. I keep saying I need to go to legalzoom. com and create a will with my end of life wishes. To be honest to really don't know what I want. I am still pretty healthy so it's easy for me to right now say I can't imagine every wanting a DNR! Heck no I want every medical treatment and trick. As I get older and more disabled I am sure I will drastically change my mind.
We all need to be be prepared for our futures. We are not promised tomorrow so we all need to live each day to the fullest and get our affairs in order. It will only help our loved one in the end.

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I hope you all have a great Sunday!
Thanks
Christine