Energy!!
I haven't posted much lately. I haven't had too much energy. Found out my anemia was slightly worse. My hemoglobin was 8. My vitamin D was 8.2. This might explain why I have no energy, constantly dizzy and light headed. So I am on iron pills twice a day and prescription strength vitamin D pills. They are 50,000 IU. I take 1 a week. The iron pills sure have done a great job of making my constipation even worse. I didn't think it was possible. Yet was!!! I am normally clogged up but with these darn iron pills I am clogged but now I am clogged like a 50 year old mucky old sink pipe! My pipes need replacing! They should do intestine transplants. If my husband and I could split our intestines. We would both be regular.

Yesterday I was trying to straighten out our bedroom walk in closet. Doug came in and took some trash. I was on the floor in my knees sorting and straighten shoes and other stuff. My baby was right beside me as usual...my dog. I had a urgent urge to pee. I tried to get up. I couldn't do it! I even opened up my walker and tried to use it to try to pull myself up. So I sighed and sat back on my knees as I pee'd more in my pee pad! My closet door is real close to my bathroom door. I thought "ok start crawling or rolling to the door"! Thankfully before I had to start rolling to the bathroom, which I couldn't of got up if I had made it in there anyway! Thankfully my husband came back in. He helped me up! I have to realize I can NOT squat or get down on my knees anymore. It's a horrible feeling of helplessness.
But what a sight that would have for my husband to see....my big ass trying to roll out of the closet...flopping back and forth my shirt rolling up showing all my rolls!! My husband would probably have an asthma attack from laughing if he saw me doing that! Lets hope I never end up in a situation where I have to roll my way out of any room! LOL

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Christine



MRI

2/5/2013

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MRI
I had an MRI yesterday. I had previously scheduled for an open MRI. I am claustrophobic. I was sick and coughing. The tech came out and asked if I thought I would be able to not cough for 15 minutes at a time for the test. I laughed and said I was sucking on a cough drop right now. So NO! She said had I had an open MRI before. I sad no just the normal ones. She said ok we need to reschedule because your sick plus if you have have a closed MRI before you should continue to have them for consistency. She said they could sedate me.

So I show up for my MRI and for some reason my husband had to check me in because I was going to be sedated. They gave me Valium. I had to wait 30 minutes. Then it was my time. My tech helps me walk in as I am a little wobbler then normal. So I lay down on the table. It seemed smaller to me then the last time I had one. So I laid down. Thank heavens I didn't pass gas! As soon as I lay down I immediately close my eyes. I know that face mask that locks my head in place is on its way. That thing scares me. To me this mask is like the mask from "Silence of the Lambs" you know the leathery one with those metal things covering this mouth. That freaks me out! My tech locked on my face mask. So now I am locked and loaded and ready to go! Trapped stuck and unable to move. So it starts....I start sliding into the "medal coffin". My arm are semi crossed on my stomach. I don't have to guess when I am fully inside the "medal coffin" because it was quite clear when my arms and belly scrap the roof of the MRI machine! I couldn't look around because I am afraid to open my eyes but I am positive I am taking up every inch of this tube! I know now how a can of biscuits feel...if they had feelings! I though if I farted right then I would pop out like a biscuit from a freshly popped can! A few times the sounds from the MRI would stop. To me it seemed rather lengthy but I am sure it was just a few minutes. I would start to freak a little so I would call out....hello...anyone there?? No answer!!! I would say it again...no response. Then the sounds start up again. I think there is a camera in the MRI machine that the tech's watch. I can just see them watching them laughing at me. Telling another co-worker....."oh wait watch this"....then they stop the machine and then I say "hello...anyone there"!! And they laugh!!! LOL I can laugh because honestly this would have been something I would have done myself if I had worked in this field! Come on you know you would have too!! Lol. To imagine all the funny faces we all must make in the MRI machine with that face mask on! Man I bet some are priceless! Damn that HIPPA law other wise you know we would see some of us one funny home videos!

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I hope you all have a great Wednesday!
Thanks
Christine
 
I know we have talked about doing an "Al Roker" before but I gotta tell you about this one! A day after I AMA'd myself from the hospital it was my laxative day. I took them at bedtime like normal but the next day......nothing! This has happened before. My husband said he thought it was because I hadn't eaten much over the past few days. So I took more laxatives then I took the night before. We went to bed. The next morning my husband got up and I was still sleeping. I got up to go pee. I sat down on the toilet and to my disgusting surprise I had apparently "Al Roker'ed" everywhere! No it was way to bad to even be called an "Al Rocker".......I would say I had "Gone Squatchin!!! I tried to clean up so I could check my bed before my husband came back in the room. Sadly my carpet looked like Sasquatch had trampled through the mud and left muddy foot prints from my bed to the bathroom. I quickly jumped in the shower. I was hoping to clean up and clean my carpet before he came back in the room. Unfortunately that's not how it went for me! Halfway through my shower he comes in. He makes this noise kinda like a cross between a gasp and sigh/vomit in your mouth type of noise. I told him I would clean it up. He said..."oh thank heavens because I almost threw up"! When I got out of the shower my husband had lite a few candles in our room. One he set behind our fan and turned on the fan. I have to admit our room did smell "a little nutty"!!!

It was a disastrous mess! I was not even aware I was so full of shit but apparently I was! LOL!

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I hope you all had a great laugh! Have a wonderful Sunday!
Thanks
Christine
 
Continuation of my hospital saga!!
Ok I left off after my nurse had put my IV in. It must have been around 7 pm. A respirator therapist came in. She hooked me up for an hour treatment. She asked me if I had COPD. I said no and why was I getting a breathing treatment I was here for heart failure? I am not sure if I ever got an answer. I have never seen such a larger container for breathing treatment medicines. She dumped four or five medicines. It was quite a cocktail. The mask went over my nose which already had oxygen tubes already in it. She put it on me then she too disappeared. Maybe there was something in the water !! Lol

After about 15 minutes of the treatment I had to go to the bathroom. I had to pee again! No nurse was around so my husband unhooked me from everything. When he took off the breathing mask he spilled it down my back. I was glad because it was giving me serious heart burn. My husband helped me to the bathroom and hooked me back to all my equipment. We waited and waited. Then we waited some more. My husband finally went home to supervise our teenagers at 11:00 pm. He only left because my nurse said I would be going up to my room any time.

Of course I had to go pee again! My nurse was no where around to unhook me from all my machines. I unhooked myself. I was already sitting at the end of my gurney because I couldn't lay on that so-called mattress any longer. So I stand up and go to take a step. My body leg went forward and my foot twisted and like a huge big fat sack of potatoes I went crashing to the floor. I slammed onto that tile floor like a bullet hitting a target and I made a very loud thud noise! I would have loved to have seen my facial expression in slow motion on a camera! I bet it was priceless! I am sure you can imagine just how painful and embarrassing this was. A doctor in the next exam curtain open up the curtain and said "don't get up" "wait for help" but didn't offer to help. My respiratory therapist reappeared and some guy helped me up. I guess it was a good thing I was wearing those damn "non-slip socks they made me wear! It appears my blood pressure had become extremely low. I don't know the exact number I just know the bottom number was 31! If my frickin nurse had been around instead of gosh knows where he was I wouldn't have gotten hurt. My ankle immediately started swelling. My nurse brought me a walker and put a bracelet on me that said "fall risk"! Now I was labeled!

They came and did an X-ray of my foot. It was now about 1:30 am. My nurse told me they had a room for me. I asked if its was a room by myself. He said no. I asked him if he could ask if since I fell because this hospital is understaffed and overworking the staff and I fell as a result of that. I told my nurse I wasn't upset at him at all but could he ask. He went to ask. About 10 minutes later he came back and suddenly had a shitty attitude. He walked around the corner and was mumbling "I should be grateful to get any room"! I didn't say anything to him. About 10 minutes later .....ok are you sitting down...... Two men in suits and a security guard came to talk to me! I was takin aback! I couldn't understand why these men were here to talk to me. One of men in the suits says "I understand you want your own room". " I said yes I have been here for 12 hours, I have fallen down because your understaffed and are over working the staff you have plus I snore like a bear and It wouldn't be fair to anyone else". Then that EMT (she was the one who was talking smack about the Hispanic mother and child) stuck her head in my curtain to tell me to be quite because their was a child their. I said. "So.....remember you told all of us she didn't speak any English"!!!! She just shut the curtain!

I was so mad that they had brought these men in suits and a security guard! I said get this IV out of my arm I am going home! I had had all I could take from this hospital! I signed out AMA! I will NEVER EVER go back to that hospital again! Remember I was there for 12 hours simply to get admitted! I will wait and call an ambulance and the nearest hospital is about 3 minutes away and it's not that crappy hospital!

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I hope you have a wonderful Saturday!
Thanks
Christine
 
Ok I am alive!! I am still weak but I am getting stronger by the day.
Wow this entire experience has been bad! I learned the the BIG difference between private health insurance like I used to have Kaiser and the Medicare health insurance in have now. So I will start with my cardiologist told me to go to the ER to be admitted. Sounds simply. With my previous insurance I would simply go to hospital to admitting and be admitted. I have had this insurance since 1996.

My hips and legs were in severe pain and I could barely walk. We drove up to the ER entrance. My husband went inside to get a wheel chair for me. He came out and said sorry honey he couldn't find one. I also had to pee really bad. He helps me out of the car and he turns around and I hold onto his shoulders. We walk slowly. I am crying because the pain hurts in my hips plus I am now uncontrollably urinating all over myself and the floor with each step. People can clearly see this is happening. I was crying to my husband. He said " how the hell cares what these people think"! We got to the bathroom and I changed. I came out and my husband had found a wheelchair. We wheeled out to the waiting room and to my horror a janitor was mopping up my urine trail! My husband disgusted me and it was as if I had a contagious disease. The seats around me cleared out faster then as if someone has yelled "IMMIGRATION"! In the ER! Lol
husband went

I was confused because even though my doctor had called the hospital and told the I was coming to check in and I had congestive heart failure previous heart condition of cardiomyopathy with an ejection fraction fallen back down to 20%....I had to go through the ER like everyone else here. Yes like the other 85 other people! We got there around 2:30ish . Around 6pm my coughing and breathing became worse. My fingers became numb and I lost the blood flow. I was taken back to the triage nurse. Where they bumped me up to another level. Which would get me back to the ER quicker! While we were waiting we went to have a chest X-ray, blood work and an EKG! When we were finally called to the admitting window I almost lost it when she told me this didn't mean I was being admitted. I still had to now wait to be called back to the ER! I couldn't believe how stupid this entire ordeal was. I wasn't there to visit the ER doctor. I was there to be admitted. Finally we were called back. I was dumped on a gurney and then left alone. After 45 minutes a lady nurse came in and hooked me up to the heart monitor. i told her I had to go to the bathroom. She put on some non-slip socks on my feet. Then when I got back from the restroom she hooked me up to the heart monitor. That was the one and only time we ever saw her. It was like she just just disappeared! Then about an hour later a male nurse came in and was irritated that the lady nurse never put an IV in me. So he put one in. I will continue my story tomorrow. It's too long to read in one day! Lol

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Christine


 
Coughing, not sleeping and falling!
I haven't posted in few days. I have been sick. I lay awake all night coughing and coughing. I have tried just about every type of cough medicine that's out there. Sure they stop my cough for 10- 15 minutes so unless I drink an entire bottle I don't see any cough medicine helping to stop my cough. I am so tired or coughing! I have tried sinus meds, cold meds and severe cold meds. I know I am not in need of an antibiotic because my phlegm hasn't changed colors.

So we had a garage sale Saturday. I was bending down to pick up some items that my husband had placed under a table. I squatted down. I tried to get up but with all my strength I couldn't pull myself up. Thankfully my husband was right there to grab me so I didn't hit the cement. Later on that day I was inside my house. I bent down to grab some books. I squatted again. This time I was alone in my hallway. I tried with everything I had to pull myself up. I couldn't. It was as if my lower legs have no strength. I was so scared! I fell backwards. I hit my head on the floor and it also knocked the wind out of me. I laid there I couldn't catch my breathe. I was so scared. The only thing i saw was my sweet dog beside me. He looked very scared! i have never seen him look this way before. I felt like a fat roach stuck on its back, but I couldn't breathe. I could shout for help cause I couldn't breathe. It took about 10 minutes to catch my breathe. Then like a beached whale I rolled over and crawled to my bedroom. I crawled to my knees then onto my bed. I learned I can no longer squat down. Shoot my vitamin D in low I don't want to fall and break a hip or a bone. Who will do the laundry, the shopping and the cleaning in my house? Maybe the "laundry fairy" , "shopping fairy" and "cleaning fairy" that my family thinks does it now!! LOL

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I hope you have a great Wednesday.
Thanks,
Christine
 
Dry Mouth
We have all experienced dry mouth on occasion. Sometimes it may be from medicines or from a cold that may cause you to sleep with your mouth open. I am am experiencing this right now. I woke up earlier and my tongue felt as if it had completely dried out. I touched my tongue and even the texture of it felt different. I couldn't speak at all. I wondered if I should stick my tongue into a cup of water to rehydrate it! I took a drink of water. I swished it around my mouth a few time before I swallowed. My tongue still didn't feel normal yet. I drank more water and got a cough drop. I wondered if a tongue can actually completely dry out and fall off? If that's possible I was pretty close today!!! LOL

That is one of my biggest pet peeves. Talking to someone who has a dry mouth! They don't have to be in front of me either, because on the phone can drive me crazy too!!! I was talking to my son tonight and he said you need a drink of water. I said "oh does that drive you crazy too". He said "yes"! I don't know what it is about that that drives me crazy and makes me sick to my stomach at the same time! LOL

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I hope everyone had a great weekend. I hope you have a blessed week.
Thanks,
Christine
 
Bladder Woe's
Apparently a bladder is about the size of a pear. You know how a cow has 4 stomachs. I am starting to think my bladder has split and divided into four teeny tiny bladders. I know it sounds crazy and stupid but what else could explain my bladder? I go to the bathroom. It seems quite urgent and all that comes out is about a 1/4 of a cup. I get up start to walk out a BOOM! The urgency comes back. I turn around and go back. This time I go slightly go a little bit more. This is why I feel like my bladder has split into more than just one! LOL

I went online and found this hilarious!
It's on doing bladder exercises.

When you start training, empty your bladder first thing in the morning and not again until the interval you’ve set. (Ok if we could control our bladders like this would we need to do these exercises??)
If the time arrives before you feel the urge, go anyway. If the urge hits first, remind yourself that your bladder isn’t really full, and use whatever techniques you can to delay going. (Ya cause telling your bladder its not full and your not going to empty it will work!! hey maybe if that doesn't work we should try cussing our bladders out! maybe that would work!!! lol) Try the pelvic floor exercises (if i get on the floor who is gonna help me up??? ) sometimes called Kegels, or simply try to wait another five minutes before walking slowly to the bathroom.(WAIT.....if I wait I will be waiting in wet clothes and standing in a puddle)

I found this whole this so stupid and useless!!! It did mention in the article about injections. It never mentioned what kind of injections it was. Have you ever heard of an injection that helps with bladder issues? If you have let me know.

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I hope you have a wonderful Sunday!
Thanks
Christine
 
Do you let MS dictate your life?
I think most of us are guilty of this more times then we are aware of it. I know I am. We are all married to MS and sadly we can't get a divorce. We can't allow MS our ruin our lives. You can't be afraid to ask for help if you need it. You can't stay locked inside your home. You need to get outside and stop keeping yourself cooped up. Get out and go to your local MS meeting. It's only once a month. You will meet people in your area with the same struggles as you. We can never have too many friends.

We all have strengths inside us that we don't know we have. It's time to reach deep inside ourselves and grab that strength and stop letting MS live our lives for us! Dang it!!! Lets all STOP and make a change today! It will be like we got a separation (instead of a divorce) from MS!! LOL

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I hope you all have a great Saturday!
Thanks
Christine

 
I "Al Roker'ed it"!
I watched 60 minutes on Sunday. Al Roker was on there. He talked about his gastric-bypass. He spoke about one day he ate something he shouldn't have. He was at the White House getting ready to interview President Obama. He said he suddenly pooped his pants and had to throw his underwear away in the bathroom at the White House! So I figured if Al Roker can tell the world he pooped his pants at the White House then dang it we shouldn't be embarrassed if we do it too!!!! So let's all feel free to say it.....I have "Al Roker'ed in my car twice....and once in my bed!!!! Go ahead and just say it! It's freeing!!! LOL

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It's FRIDAY!!!! I hope everyone has a great day and that no one pulls an "Al Roker"!

Thanks
Christine